Last Updated: August 7, 2019
I. Data Controller and Contact for Opt-out, Correcting, Updating, or Deleting Requests
The Data Controller for Engage Parkinson's is Denali, with registered offices at 161 Oyster Point Blvd., South San Francisco, CA 94080 U.S.A. ("Controller").
II. Information We Collect
Engage Parkinson's may collect information from or about you when you register to become a Registered Member, of the website.
A. Information We Collect When You Register
If you choose to become a Registered Member of Engage Parkinson's, you must provide your email address, age, your relationship to Parkinson’s disease (for example, as a diagnosed patient, caregiver, or health care provider), other information related to Parkinson’s disease risk factors or diagnoses (for example, certain genetic, ethnic or familial information), medications you may be taking, and the zip code of your residential address.
B. Information We Collect When You Use Our Website
We may automatically collect certain technical information from your computer or mobile device when you use Engage Parkinson's.
1. Device and Usage Information. We receive information from your device, including IP address, web browser type, mobile operating system version (to the extent applicable), and device identifiers. We receive information about your interactions with the website, such as the time spent interacting with content and the dates and times of your visits.
2. Information from Cookies and Similar Technologies.
a. We may collect information using cookies or similar technologies through your use of Engage Parkinson's. Cookies are pieces of information that are stored by your browser or on the hard drive or memory of your computer or other Internet access device. There are several types of cookies, including, for example, browser cookies, session cookies, and persistent cookies. Cookies enable us to personalize your experience on the website, maintain a persistent session, passively collect demographic information about your computer, and monitor other activities. Most major web browsers in default settings will initially accept cookies, but you may be able to adjust your browser’s preferences to issue an alert when a cookie is downloaded, or to block, reject, disable, delete or manage the use of some or all cookies on your browser or device. Flash cookies, which are cookies based on Adobe Flash, and which may be permanently stored on your device, help store user preferences and activity, and may allow a website to recognize a particular browser or device. Generally, Flash cookies are not managed by the same browser settings that are used for regular cookies.
b. Engage Parkinson's may use other types of local storage (such as browser-based or plugin-based local storage). The website may collect information about your use of the website using scripts. Scripts are pieces of code embedded in the website that define how the website behaves in response to certain keystrokes or mouse clicks (for example, if you click on an embedded link) made by you. Scripts may temporarily be downloaded to your computer or device from the website server, but they are active only while you are connected to the website, and are deactivated or deleted when you disconnect from the website.
c. Please be advised that if you choose to block, disable or change the settings for any of the above technologies or other data collection, tracking or analysis technologies of the website, certain areas of the website may not function as intended.
3. Third-party Analytics Programs. Please note that analytics service providers may set and access their own cookies, pixel tags and similar technologies on Engage Parkinson's and they may otherwise collect or have access to information about you which they may collect over time and across different websites. Any such information is collected by such third parties and not Denali. For example, Google Analytics may collect information on users visiting the website. For more information on the data that Google Analytics collects please visit: http://www.google.com/intl/en/privacy/privacy-policy.html
III. HOW WE USE YOUR INFORMATION
We use the information we collect about and from you for a number of purposes.
A. Engage Parkinson's Maintenance
We may use your website usage data, with or without information you provide us, for general maintenance of the website, measuring the website, providing you a customized experience, providing and improving the website and making it more useful, analyzing how you use the website, and managing the website network resources.
B. Communications With You
Denali may use your information to communicate with you and respond to your inquiries. For example, we may send email to the email address you provide for informational and operational purposes.
1. Engage Parkinson's Updates. If you have registered or elected to receive updates from us regarding our business, products, therapeutic disease areas of interest, services, treatment offerings, research opportunities or clinical trial opportunities (collectively, "Engage Parkinson's Updates"), we will send you these communications. Engage Parkinson's Updates may relate to Parkinson’s disease and your relationship to the disease, and research or clinical trial opportunities, where such opportunities may be sponsored by, conducted on behalf of, or in collaboration with third-parties, including non-profit organizations, academic institutions, pharmaceutical companies, or health care providers, and such third-party contact or business information.
2. Promotion. We may use information we collect for promotional purposes, such as providing you with materials that may be useful, relevant, valuable or otherwise of interest to you. For example, we may send you materials related to research or clinical trial opportunities, where such opportunities may be sponsored by, conducted on behalf of, or in collaboration with third-parties, including non-profit organizations, academic institutions, pharmaceutical companies, or health care providers.
C. Compliance with applicable law and our own rights and obligations
We may also process the information we collect about you, or the information you provide, for the following purposes: (i) any right or obligation under, or enforce, our Terms or other legal rights, including intellectual property rights, and to research, develop and commercialize our drug candidates; (ii) as may be required by applicable laws and regulations or requested by any judicial process or governmental agency; and (iii) to comply with industry standards and our policies.
D. Aggregate Data
We may de-identify or anonymize (i.e. a form of your information in which you are not identifiable and cannot be contacted), your information, and we may process it in an anonymous and/or aggregated form for other research, clinical or business purposes than described above.
IV. HOW WE MAY DISCLOSE YOUR INFORMATION
A. Service Providers & Business Partners
We may share your information with our vendors, service providers, and other third party services related to maintaining and operating Engage Parkinson's on our behalf, (for example Diffusion Group, LLC ("meltmedia") who help us operate, store data and maintain the website). These vendors, service providers and business partners shall be subject to contracts to help protect the confidentiality of the information.
B. As Required by Law and Similar Disclosures
We may disclose information about you: (i) if we are required to do so by law, regulation, or legal process, such as a court order or subpoena; (ii) in response to requests by government agencies, such as law enforcement authorities; (iii) when we believe disclosure is necessary or appropriate to protect against or respond to physical, financial or other harm, injury, or loss to property or individuals; or (iv) in connection with an investigation of suspected or actual unlawful activity.
C. Merger, Sale, or Other Asset Transfers
We reserve the right to transfer your information to service providers, advisors, potential transactional partners, or other third parties in connection with the consideration, negotiation, or completion of a corporate transaction in which we are acquired by or merged with another company or we sell, liquidate, or transfer all or a portion of our assets.
We may also disclose your information with your permission.
E. Anonymous and Aggregate Data
In addition, we may share anonymous and/or aggregated reports with third parties. For example, if you contact Denali regarding your experience using one of our investigational or marketed products, we may use the information you provide in submitting reports, alone or in collaboration with our research and development partners, to the U.S. Food and Drug Administration or other similar government agencies such as the European Medicines Agency.
V. YOUR CHOICES AND RIGHTS
You may opt-out of receiving related emails from us by following the unsubscribe instructions provided in those emails or by contacting us directly at the contact information given above.
Some of the information you may choose to provide as a Registered Member is the same information that "covered entities" must keep private according to the U.S. Health Insurance Portability and Accountability Act of 1996 ("HIPAA") and its implementing regulations (for example, the medications you may be taking), however, neither Denali nor Engage Parkinson's are "covered entities" or subject to HIPAA and its implementing regulations. Further, this website is not meant to serve as a way for Denali to provide safety information related to any of its investigational therapies or clinical trials, nor is it meant to serve as a way for you to provide any adverse reporting information to Denali if you are taking any of its investigational therapies as part of a clinical trial.
VI. HOW WE HOLD AND PROTECT YOUR INFORMATION
We take seriously the trust you have placed in us with your information.
A. Data Retention
We may retain your personal or other information for as long as necessary to comply with our legal obligations, resolve disputes, enforce our rights, or as long as we provide you with the products and services associated with Engage Parkinson's. We may delete your personal or other information at any time, except as set forth herein or as required by law.
B. Data Protection
To protect against unauthorized destruction, loss, alteration, access, disclosure, or use (collectively, "Unauthorized Processing"), we maintain administrative, technical, and physical safeguards designed to protect the information you provide and that we collect about you. For example, the website encrypts the transmission of information through Engage Parkinson's by using secure transmission technology. Unfortunately, despite these efforts, we cannot ensure or warrant the security of any information you provide to us. In addition, we are not responsible for the security of information you transmit to Engage Parkinson's over networks that we do not control, including the Internet and wireless networks. As a result, we will not be liable for any loss or damage arising from any Unauthorized Processing of your information.
VII. HOW WE RESPOND TO DO NOT TRACK SIGNALS
At this time, Engage Parkinson's does not respond to or modify its practices in response to browser DNT signals. Denali is monitoring the development of industry standards for responding to DNT signals and may update its practices should such a standard emerge. For more information on Do Not Track please visit http://www.allaboutdnt.org/.
VIII. CHILDREN’S PRIVACY
Engage Parkinson's is a general audience website intended for use by adults 18-year of age or older only. We do not knowingly collect information online from children under the age of 13. If Denali becomes aware that any person submitting information to the website is under the age of 13, we will promptly take steps to delete any personal information collected and terminate the relevant account. If you become aware that your child or any child under your care has provided us with personal information without your consent, please contact us at the contact information listed below.
IX. YOUR CALIFORNIA PRIVACY RIGHTS
If you are a resident of the State of California, pursuant to Section 1798.83 of the California Civil Code, you may have the right to request the following at any time: (a) information from Denali free of charge regarding how Denali shares certain information collected through Engage Parkinson's with third parties who use such information for direct marketing purposes; and (b) the discontinuation (or opt-out) of Denali’s sharing of such information with such third parties.
Please submit any such request to the above address, and mark on your request "California Privacy Rights Request" in the subject line, and clearly state the following in the body; the nature of your request; that the request is related to "Your California Privacy Rights;" your name, street address, city, state, zip code and email address; and whether you prefer to receive a response to your request by mail or email. Denali cannot accept a California Privacy Rights Request via telephone or fax; and is not responsible for a California Privacy Rights Request that is incomplete, incorrectly labeled or incorrectly sent.
California residents also may request that a business that collects their personal information provide access, upon a verifiable consumer request, in a portable and (if technically feasible) readily usable form, to the specific pieces and categories of personal information that the business has collected about the consumer, the categories of sources for that information, the business or commercial purposes for collecting the information, and the categories of third parties with which the information was shared. California residents have the right to submit a request for deletion of information under certain circumstances. To submit a request, please send an email to firstname.lastname@example.org.
By using Engage Parkinson's, you understand and consent to the collection, processing, transfer, use and disclosure of your information provided on the website as set forth on the website and further described herein by Denali Therapeutics Inc.